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Living Fully, Bravely, and Purposefully on the Journey with Parkinson's.

Welcome to Janie's Journey. For fourteen long years, Jane Pinho lived with symptoms without answers, a frustrating and isolating experience that finally ended with a Parkinson's diagnosis. Her long road to understanding is the heart and inspiration behind this space.

 

This is her story, but in it, we hope you find your own. Whether you are navigating the first steps of a diagnosis, supporting a loved one, or have been living with Parkinson's for years, her journey becomes your journey. Here, we will share vital resources on how to diagnose, practical ways to cope with daily challenges, and the inspiration needed to live a full and meaningful life with this disease.

Our journey doesn't stop at support; it extends to finding a cure. We are proud to have teamed up with The Michael J. Fox Foundation for Parkinson's Research, a global leader in the fight for a cure. You can help the cause and accelerate critical research by donating through our partnership. Together, we can turn this journey of hope into a future without Parkinson's.

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Let's make a tidal wave!

Parkinsons is no day at the beach, but you can help keep the cloudy days away. Here is my fundraising page for The Michael J. Fox Foundation for Parkinson's Research.


Watch Janes video presentaion from the Waterbury Palace Theater Oct. 7, 2025


1 - Introduction


2 - What is happening to me?


3 - The cure?


4 - The causes



Watch Janes video presentation from the Waterbury Palace Theater Oct. 7, 2025


1 - Introduction


2 - What is happening to me?


3 - The cure?


4 - The causes

Join our blog community

Join our blog community

Comments (23)

Jane
3d ago

Hi Anthony, so great to hear from you. I so enjoyed working with you including you in our staff meeting sometimes. lol. Honestly, every time I go to Cheshire think maybe you’ll want to Anthony. Thank you for taking time to visit website if I can answer any questions or help you just reach out to me. I recently heard about Ray and I am so sorry. Paul’s granddaughter is playing soccer for Cheshire. I know she’s much younger than your kids. What have you ever got a good game going on please let me know.

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asalerno
4d ago

Hi Jane, Great seeing and hearing you from the videos. Thank you for being brave enough to share your story and experiences. Hope you and the family are all good. Wish you nothing but the best!

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Jane
5d ago

I look forward to joining George in a future podcast interview

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Rob Edwards
Nov 14, 2025

Here at the Job Shop Company In Prospect CT,  PD has touched so many of us; employees, relatives and friends alike.  Our relationship with Janie began many years ago at a financial institution where she helped and advised us as she did with so many customers. As she continued to work with us, none of us knew that PD would  become one of her future challenges. Friendships sometimes grow out of shared experiences, sometimes through adversity - ours was both. We are donating to this cause for Janie, our employee Pete Deleo, Jerry Schmidt Sr., and for cousin Sue Flury - all friends on the same journey as Janie.  We are also making a matching donation offer - for anyone who donates between now & Thanksgiving we will match your donation 2 for 1. (If you give $100 and mention "Job Shop Match" we will donate an additional $200). 2 for 1 regardless of amount. 

Here is the link to the DONATE page (The Blue Box up above too!)

https://give.michaeljfox.org/fundraiser/6742916


Together, hopefully, we can all find a cure for PD.

We Love you Janie. You Are Not Alone

Rob, Jerry, Marge, Ben and the whole Job Shop Crew. 

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anntor
Nov 05, 2025

Hi janie i just watched your story . you are inspiring and brave. i was diagnosed with ent of 2023 after several years of hand tremors. I questioned my pcp and cardiology docs. They said they didn’t see it. Finally i went to neurology at yale. checking couple movements and it was diagnosed. Exercise was the cure all! I have always been my own advocate for heath as well as for my kids.i am 78 years old and have two kids . i’m divorced. My daughter now 56 years old is handicapped she lives in a group home while pregnant my doctors told me i was putting on to much weight actually wanted me to take diet pills. i said no. Delivery was one month early and i had twins. My daughter was born and lacked oxygen causing brain damage. The doctor then said i had another”lump” insides reached in pulled the baby out who was dead! The doctors are all the best in their field until they screw you up! i became a strong advocate for my lisa . Lisa story never end ended i watch the quality of care she receives and don’t stop. My son thank God is fine .

i have fought for lisa all of her life and now im diagnosed with parkinson! No meds yet. i have tremors recently i tripped over my dog broke my pelvis four places so it’s hindered my exercise classes for parkinson.i just started back to them. i am terrified of PD. i appreciate your story thank you God bless

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Janie
Dec 29, 2025
Replying to

Just wanted you to know I’ve been thinking of you and I wish you well. Wonder how your dealing with your day-to-day activities in where you’re at with your Parkinson’s? 2025 has been amazing year having incredible joyous life moments. Can you also challenge me dealing with this disease those of us who have it now we have difficult moments difficult hours difficult days, difficult months and sometimes difficult years. My moments are turning into days. My challenges have accessing where I’m at with my Parkinson’s. Is a temporary or is it permanent? What can I do when please with a symptom it scares me? Can I improvise, adapt and overcome this or is this my new reality? I can share some of my challenges that maybe you can relate to. So many doctors appointments always someone new treating a new symptom that may be related to my Parkinson’s may be related to my aging or something else that I may be faced with? This year my visits included GP, neurologist movement disorder specialist, gastrologist, dentist, surgeon, lab work, dermatologist oncologist, Nutritionist, physical therapist, natural path, doctor, social worker, psych examination, starting the process for DBS, research trials, round density test, bio feedback therapy, more bloodwork, reassessing to see if you need to change supplements, looking for other ways or possible approvals for new ways to treat Parkinson’s to give me more options than one! They take Rytary which is an extended release carbidopa levodopa. As a female I’m also feast with. Is this post menopause symptoms? What’s next? So as I faced all those and learned results, it wasn’t the results that was difficult. It was the waiting projecting thoughts of what it could be but what I’m gonna face now and how I can change that to a positive and say it’s OK you can do this.? all the challenges of facing people people seeing me differently seeing changes before I notice them or people thinking they see something that’s doing nothing. Fighting for fatigue rigidity, slowness, pain, all while dealing with how this medicine affects all of my organs.

Let’s not forget about expense of this disease. It is not recognized by our government or federal funding research serious pharmaceutical class as well as Medicare not covering for wellness or preventive care versus reactive care.! just sharing some of my year. Hope you share yours so I can advocate and understand what others are going through. I also can’t help to share. I was recently introduced to someone I will join a team to advocate, educate and help people with my employer and the person I’m working with has muscular dystrophy. I wanted to jump through the phone and hug her. Courage to share her sweetness, kindness and compassion to me all facing difficult challenges for some more difficult than mine made me realize so many people are fighting things that we don’t know when we ask unless we can talk unless we share and not just think of ourselves, but think about others also makes me realize to tell others to not be so shallow and think the smallest of their problems, compared to the huge challenges that people face every day. The gratitude I choose to embrace as it humbles me and reminds me that I am stronger, braver, and smarter than I think. I can’t do this. I am not alone. You are not alone. We have to walk our journey. No one can do it for us, but we can invite others, especially in the hard days. And on those hard days reflect on all the great days and know there’s more to come! May God bless you as we close our 2025 I wish you greater days greater moments in 2026 a year that’s going to bring a change I believe all positive!



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Jane
5d ago
Replying to

Just checking in to see how you’re doing?

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MichaelD
Oct 27, 2025

Janie, last night was wonderful! How Your story was depicted through film, your spirit and the room was clearly filled with love. I can’t think of a more perfect venue for this show. It was lovely to reconnect with some people, but most of all to hear your testimony. I look forward to seeing you soon and will reflect further.  I’m sure that you are exhausted today and the rain is not helping. May God‘s comfort and peace surround you because the energy was worth the expense, and if you never do it again, you know what you did Touched many. God bless


Michael

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Janie
Nov 06, 2025
Replying to

Michael, you have been the angel that keeps showing up. Honestly, we have weathered many storms and will continue. It's just in our make up! I love you and always pray for you! God gave you to me just when I needed you most!

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Sorrina
Oct 27, 2025

Janie I am so proud of you. You are absolutely amazing!! You are so inspirational and such a great advocate and support


system for so many. I love you so much and you are forever close to my heart. You will always be a sister to me. Love you  Janie❤️🥰




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Janie
Nov 06, 2025
Replying to

Thank you always for your continued support. You are the rock that's always there holding me up! I love you girl. Remember the car ride out on calls as my car wasn't moving so quickly up the hill. I said I think I can, I think I can, I think I can and we made it up the hill laughing all the way!

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Jennifer Stack
Oct 22, 2025

I'm sorry I missed your show at The Palace but watched your interview about your journey. I'm so sorry for what you're going through but I am amazed at how strong you are. You truly are an inspiration. My mom still says everyone is dealing with something, & we have to fight the fight as best as we can. God Bless You.

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Janie
Nov 06, 2025
Replying to

Watch for more to come since you couldn't come that night. It was recorded for all that could not make it. Thank you for your kind words of inspiration. You are right. Everyone has a story and there is always someone else's story that reminds you, your story isn't as bad or difficult as others and gives you gratitude.

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Joann F
Oct 08, 2025

Incredible program last night! The grace, bravery and wisdom with which you've handled your journey is so inspiring. I'm sure your efforts will have a very positive impact. The world is lucky to have you!

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Sheree Marcucci
Oct 08, 2025

Jane, Good morning Warrior Star! Your presentation was so powerful last night for our 2ND ACT series at the Palace Theater in Waterbury, CT!! Your dream team Rob and Tom, along with your Dr, Michelle Diagostine, did a fabulous job with the video & live portions of the presentation!! As the mother of 2 sons like you, it's obvious yours adore you. And Paul, your supportive fiancee... he's a keeper! You are both blessed to have found one another!! Hope you know what an impact you made and will be making going forward. We can never truly know the reason why, but you have turned the many twists in your life path, into one to bless others. May God continue to bless and guide Janie's Journey. 🫂🙏❤️

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Janie
Nov 06, 2025
Replying to

Sheree, God put you in my life. Your beautiful prayer before I went out to the public was amazing! We walked shared many paths on seperate journeys but by far this exceeded what the human mind could not have imagined! Thank you for reading my story on Facebook, for reaching out to me and for not backing down when I challenged you with "Why me". My story is helping others. It has brought me to tears and shaken me not from my Parkinson's LOL!

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