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Living Fully, Bravely, and Purposefully on the Journey with Parkinson's.

Welcome to Janie's Journey. For fourteen long years, Jane Pinho lived with symptoms without answers, a frustrating and isolating experience that finally ended with a Parkinson's diagnosis. Her long road to understanding is the heart and inspiration behind this space.

 

This is her story, but in it, we hope you find your own. Whether you are navigating the first steps of a diagnosis, supporting a loved one, or have been living with Parkinson's for years, her journey becomes your journey. Here, we will share vital resources on how to diagnose, practical ways to cope with daily challenges, and the inspiration needed to live a full and meaningful life with this disease.

Our journey doesn't stop at support; it extends to finding a cure. We are proud to have teamed up with The Michael J. Fox Foundation for Parkinson's Research, a global leader in the fight for a cure. You can help the cause and accelerate critical research by donating through our partnership. Together, we can turn this journey of hope into a future without Parkinson's.

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Let's make a tidal wave!

Parkinsons is no day at the beach, but you can help keep the cloudy days away. Here is my fundraising page for The Michael J. Fox Foundation for Parkinson's Research.


Watch Janes video presentaion from the Waterbury Palace Theater Oct. 7, 2025


1 - Introduction


2 - What is happening to me?


3 - The cure?


4 - The causes



Watch Janes video presentation from the Waterbury Palace Theater Oct. 7, 2025


1 - Introduction


2 - What is happening to me?


3 - The cure?


4 - The causes

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Comments (8)

Jennifer Stack
4d ago

I'm sorry I missed your show at The Palace but watched your interview about your journey. I'm so sorry for what you're going through but I am amazed at how strong you are. You truly are an inspiration. My mom still says everyone is dealing with something, & we have to fight the fight as best as we can. God Bless You.

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Joann F
Oct 08

Incredible program last night! The grace, bravery and wisdom with which you've handled your journey is so inspiring. I'm sure your efforts will have a very positive impact. The world is lucky to have you!

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Sheree Marcucci
Oct 08

Jane, Good morning Warrior Star! Your presentation was so powerful last night for our 2ND ACT series at the Palace Theater in Waterbury, CT!! Your dream team Rob and Tom, along with your Dr, Michelle Diagostine, did a fabulous job with the video & live portions of the presentation!! As the mother of 2 sons like you, it's obvious yours adore you. And Paul, your supportive fiancee... he's a keeper! You are both blessed to have found one another!! Hope you know what an impact you made and will be making going forward. We can never truly know the reason why, but you have turned the many twists in your life path, into one to bless others. May God continue to bless and guide Janie's Journey. 🫂🙏❤️

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Maria Sanchez
Oct 08

Jane! I really enjoyed your presentation last night and I am awestruck my your courage and resilience. Sending most positive vibes to you and your family. xoxo Maria

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Patricia S.
Oct 07

Dear Janie, thank you for sharing your story. It's heartbreaking to hear about the difficulties you've faced, but your courage is truly inspiring. By turning your journey into a beacon of hope for others, you are making such a powerful difference. It's superstars like you who help countless others feel less alone and more prepared to cope.

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Janiepinho@gmail.com
4d ago
Replying to

Thank you! Having courage to share isn’t easy but sharing so others don’t feel alone or isolated based on judgement is critical to educating others as my own doctor reminds me, she’s my doctor specialist and she doesn’t know what it is like so we partner, we share, it’s a trusted relationship that is built. But I knew right away she was perfect for me. No judgement journey but courage to discuss heavy stuff is having an open reminding yourself the world will always see what they choose to see unless you take risks. Some times people are meant to be temporary. We are snowflakes as we all share a disease called Parkinson’s if scientists are still trying to find what the cause is, how to stop it and how to cure it then even the smartest people in the world can’t judge us. The greatest support we have behind is research and trials. Our resources are getting cut so please share. It’s my hope that my voice encourages others to find their voice and not allow the opinion of anyone be the only voice heard!

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Roberto
Oct 07

Congratulations on a wonderful presentation! So sorry to her about your journey though, nobody deserves the path you were on. It does prove you are able to pick another path, Good luck Janie.

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Janiepinho@gmail.com
4d ago
Replying to

Thank you! Paul & I hope to attend your 2nd Act! Congratulations wishing you much success

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