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Living Fully, Bravely, and Purposefully on the Journey with Parkinson's.

Welcome to Janie's Journey. For fourteen long years, Jane Pinho lived with symptoms without answers, a frustrating and isolating experience that finally ended with a Parkinson's diagnosis. Her long road to understanding is the heart and inspiration behind this space.

 

This is her story, but in it, we hope you find your own. Whether you are navigating the first steps of a diagnosis, supporting a loved one, or have been living with Parkinson's for years, her journey becomes your journey. Here, we will share vital resources on how to diagnose, practical ways to cope with daily challenges, and the inspiration needed to live a full and meaningful life with this disease.

Our journey doesn't stop at support; it extends to finding a cure. We are proud to have teamed up with The Michael J. Fox Foundation for Parkinson's Research, a global leader in the fight for a cure. You can help the cause and accelerate critical research by donating through our partnership. Together, we can turn this journey of hope into a future without Parkinson's.

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Let's make a tidal wave!

Parkinsons is no day at the beach, but you can help keep the cloudy days away. Here is my fundraising page for The Michael J. Fox Foundation for Parkinson's Research.


Watch Janes video presentaion from the Waterbury Palace Theater Oct. 7, 2025


1 - Introduction


2 - What is happening to me?


3 - The cure?


4 - The causes



Watch Janes video presentation from the Waterbury Palace Theater Oct. 7, 2025


1 - Introduction


2 - What is happening to me?


3 - The cure?


4 - The causes

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Join our blog community

Comments (18)

Rob Edwards
Nov 14

Here at the Job Shop Company In Prospect CT,  PD has touched so many of us; employees, relatives and friends alike.  Our relationship with Janie began many years ago at a financial institution where she helped and advised us as she did with so many customers. As she continued to work with us, none of us knew that PD would  become one of her future challenges. Friendships sometimes grow out of shared experiences, sometimes through adversity - ours was both. We are donating to this cause for Janie, our employee Pete Deleo, Jerry Schmidt Sr., and for cousin Sue Flury - all friends on the same journey as Janie.  We are also making a matching donation offer - for anyone who donates between now & Thanksgiving we will match your donation 2 for 1. (If you give $100 and mention "Job Shop Match" we will donate an additional $200). 2 for 1 regardless of amount. 

Here is the link to the DONATE page (The Blue Box up above too!)

https://give.michaeljfox.org/fundraiser/6742916


Together, hopefully, we can all find a cure for PD.

We Love you Janie. You Are Not Alone

Rob, Jerry, Marge, Ben and the whole Job Shop Crew. 

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anntor
Nov 05

Hi janie i just watched your story . you are inspiring and brave. i was diagnosed with ent of 2023 after several years of hand tremors. I questioned my pcp and cardiology docs. They said they didn’t see it. Finally i went to neurology at yale. checking couple movements and it was diagnosed. Exercise was the cure all! I have always been my own advocate for heath as well as for my kids.i am 78 years old and have two kids . i’m divorced. My daughter now 56 years old is handicapped she lives in a group home while pregnant my doctors told me i was putting on to much weight actually wanted me to take diet pills. i said no. Delivery was one month early and i had twins. My daughter was born and lacked oxygen causing brain damage. The doctor then said i had another”lump” insides reached in pulled the baby out who was dead! The doctors are all the best in their field until they screw you up! i became a strong advocate for my lisa . Lisa story never end ended i watch the quality of care she receives and don’t stop. My son thank God is fine .

i have fought for lisa all of her life and now im diagnosed with parkinson! No meds yet. i have tremors recently i tripped over my dog broke my pelvis four places so it’s hindered my exercise classes for parkinson.i just started back to them. i am terrified of PD. i appreciate your story thank you God bless

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Janie
Nov 06
Replying to

Thank you for having the courage to share. After reading your story you are a survivor with strength and great courage. Your love for your daughter shows a strong force not to be reckoned with. I can share I became strong after getting knocked down one to many times. Whether it was a hand over my mouth or being told "I don't believe anyone gave you permission to speak", remember those days? That is when i learned my voice clearly was heard. I can choose to keep my mouth shut especially when I don't have anything nice to say, lol. More now because I choose not to waste my energy where it isn't useful. I'm grateful your son is ok and you still are able to advocate for your daughter Lisa. Now comes you! What comes to my mind first, is is what exercises can you do even if in bed or a chair? Your doctor only knows how to help you heal a broken pelvis but do you have a movement disorder specialist? I say that because they specialize in movement disorders but help you keep moving. What muscles can you work while healing? Have you ever tried face yoga? Everyone laughs at me when I say that, but google it. The last laugh isn't on me. I agree the unknown is terrifying. I haven't met one person yet that hasn't shared their fear with PD. After reading your story a few tiimes I have say you are stronger than you think! Maybe put a bell on your dog so you know where they are at all times. I can't count how many times that could have happened to me. My precious little Molly was always under my feet. I wish I still had her. You thanked God your son is fine so I know you know you are never alone. I just recently spoke to a dear friend and told him I wish to blend everywhere I go. His response was Jane you will never blend. Maybe what we wish for isn't what we can choose but is our purpose to help others? I'm sorry your life partner relationship didn't go as you planned, I'm so sorry for your loss of a child and for the challenges you face advocating for your daughter and now yourself. What I can share with you thru my life experience is I learned to live in the present by being present but plan for the future. Plan fun things, live life with purpose and always choose happiness even in times when you are crying inside or outside. Get it out, yell it out, swear it out and let it go. We all have good days and not so good days. They can be really bad days, hard to breathe thru days, but has anything come close to the day when a doctor told you had a lump and pulled out your unborn lifeless child while your other child was fighting to live? I can only imagine what that possibly could have felt like. It's tragic! I can tell you everyday I wake up, I listen to my body. I'm sure you do it without even realizing it. It's like a scan to see what is working today and what I may need to see what I can do to get my body to cooperate. When I feel deep pain & rigidity, I tell myself, just get up. Try to see what you can do and choose to make it the best day you can because we don't know what is next. It's not about the disease but about life. No one can tell you what is next! I hope you never stop trying something new out of your comfort zone, and choose to smile because even when you have so much on your plate, smiling seems like it takes so much weight off of your shoulders. I wish you peace, wellness and hope. You are not along. There is a whole bunch of use out there just like you! Different faces, bodies, ages, stories, symptoms, etc. but we are all diagnosed with this disease called Parkinson's. I here to fight with you, for you, for us. I'm not sure how the email works yet on my website but I will find out. In the meantime if I don't respond know it's because I am resting my body or mind. All I ask is you continue to share my story, your story to help support others and to know You Are Not Alone! I wish I could add music to get you dancing even if only in your head right now. I practice imagery. I'm an incredible dancer in my mind.


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MichaelD
Oct 27

Janie, last night was wonderful! How Your story was depicted through film, your spirit and the room was clearly filled with love. I can’t think of a more perfect venue for this show. It was lovely to reconnect with some people, but most of all to hear your testimony. I look forward to seeing you soon and will reflect further.  I’m sure that you are exhausted today and the rain is not helping. May God‘s comfort and peace surround you because the energy was worth the expense, and if you never do it again, you know what you did Touched many. God bless


Michael

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Janie
Nov 06
Replying to

Michael, you have been the angel that keeps showing up. Honestly, we have weathered many storms and will continue. It's just in our make up! I love you and always pray for you! God gave you to me just when I needed you most!

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Sorrina
Oct 27

Janie I am so proud of you. You are absolutely amazing!! You are so inspirational and such a great advocate and support


system for so many. I love you so much and you are forever close to my heart. You will always be a sister to me. Love you  Janie❤️🥰




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Janie
Nov 06
Replying to

Thank you always for your continued support. You are the rock that's always there holding me up! I love you girl. Remember the car ride out on calls as my car wasn't moving so quickly up the hill. I said I think I can, I think I can, I think I can and we made it up the hill laughing all the way!

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Jennifer Stack
Oct 22

I'm sorry I missed your show at The Palace but watched your interview about your journey. I'm so sorry for what you're going through but I am amazed at how strong you are. You truly are an inspiration. My mom still says everyone is dealing with something, & we have to fight the fight as best as we can. God Bless You.

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Janie
Nov 06
Replying to

Watch for more to come since you couldn't come that night. It was recorded for all that could not make it. Thank you for your kind words of inspiration. You are right. Everyone has a story and there is always someone else's story that reminds you, your story isn't as bad or difficult as others and gives you gratitude.

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Joann F
Oct 08

Incredible program last night! The grace, bravery and wisdom with which you've handled your journey is so inspiring. I'm sure your efforts will have a very positive impact. The world is lucky to have you!

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Sheree Marcucci
Oct 08

Jane, Good morning Warrior Star! Your presentation was so powerful last night for our 2ND ACT series at the Palace Theater in Waterbury, CT!! Your dream team Rob and Tom, along with your Dr, Michelle Diagostine, did a fabulous job with the video & live portions of the presentation!! As the mother of 2 sons like you, it's obvious yours adore you. And Paul, your supportive fiancee... he's a keeper! You are both blessed to have found one another!! Hope you know what an impact you made and will be making going forward. We can never truly know the reason why, but you have turned the many twists in your life path, into one to bless others. May God continue to bless and guide Janie's Journey. 🫂🙏❤️

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Janie
Nov 06
Replying to

Sheree, God put you in my life. Your beautiful prayer before I went out to the public was amazing! We walked shared many paths on seperate journeys but by far this exceeded what the human mind could not have imagined! Thank you for reading my story on Facebook, for reaching out to me and for not backing down when I challenged you with "Why me". My story is helping others. It has brought me to tears and shaken me not from my Parkinson's LOL!

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Maria Sanchez
Oct 08

Jane! I really enjoyed your presentation last night and I am awestruck my your courage and resilience. Sending most positive vibes to you and your family. xoxo Maria

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Jane
Nov 06
Replying to

Thank. you Maria. You came into my life not by chance. We may not have been born from the same threads but we share those threads woven from history. Thank you for your love, support and your beautiful smile!

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Patricia S.
Oct 07

Dear Janie, thank you for sharing your story. It's heartbreaking to hear about the difficulties you've faced, but your courage is truly inspiring. By turning your journey into a beacon of hope for others, you are making such a powerful difference. It's superstars like you who help countless others feel less alone and more prepared to cope.

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Janiepinho@gmail.com
Oct 22
Replying to

Thank you! Having courage to share isn’t easy but sharing so others don’t feel alone or isolated based on judgement is critical to educating others as my own doctor reminds me, she’s my doctor specialist and she doesn’t know what it is like so we partner, we share, it’s a trusted relationship that is built. But I knew right away she was perfect for me. No judgement journey but courage to discuss heavy stuff is having an open reminding yourself the world will always see what they choose to see unless you take risks. Some times people are meant to be temporary. We are snowflakes as we all share a disease called Parkinson’s if scientists are still trying to find what the cause is, how to stop it and how to cure it then even the smartest people in the world can’t judge us. The greatest support we have behind is research and trials. Our resources are getting cut so please share. It’s my hope that my voice encourages others to find their voice and not allow the opinion of anyone be the only voice heard!

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Roberto
Oct 07

Congratulations on a wonderful presentation! So sorry to her about your journey though, nobody deserves the path you were on. It does prove you are able to pick another path, Good luck Janie.

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Janiepinho@gmail.com
Oct 22
Replying to

Thank you! Paul & I hope to attend your 2nd Act! Congratulations wishing you much success

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